Data Access and Use: Discussion Document
Access to well curated and trusted health data is a vital resource for the HealthTech industry and fundamental to our ability to partner with others to develop innovations that can save lives, manage the burden of disease and support the efficient use of health resources.
Whilst the UK already performs well in the secondary use of data, a national health and care data strategy that delivers a trusted data community between patients, clinicians, healthcare providers and HealthTech companies would support even greater use of data in a manner that engenders trust from users and citizens.
The ABHI Digital Health Group has been actively campaigning to improve the infrastructure, governance and accessibility of UK health and care data. And as part of that campaign we are pleased to launch our Data Access and Use Discussion Document. This lays out the position and recommendations from industry to enable the UK to grasp the opportunity to become a world leader in ethical data use and benefit from the associated economic growth, jobs and clinical breakthroughs.
The publication is the third in a series of position statements from ABHI Digital Health, with the previous ones covering regulation and reimbursement.